My father wrote a book about his and his mother's experiences from the beginning of her illness until her death. It is peppered with poems and his experiences. If you have dealt with it in the past or currently are, you are not alone. Go to this blog: http://thedaymymotherleft.blogspot.com/ and read a wonderful and terrible story.
My plan is to include the pictures from his book once I scan them into the computer, but I felt it was more important to get it out now than to wait until I thought it was perfect.